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This questionnaire inquires about issues encountered by the individual about whom you are replying in your capacity as a friend, relative, or caregiver. Diseases or illnesses, various health problems that may be temporary or permanent, injuries, mental or emotional disorders, and problems with alcohol or drugs are all examples of health conditions. Think back over the last 30 days and, to the best of your ability, answer these questions by considering how tough the following activities were for your friend, relative, or caregiver. (Note: the questionnaire uses the term “relative” to mean ”friend,” ”relative,” or ”carer.”) For each question, please circle only one response.
H4a
I am the: Relative
1 = husband or wife
2 = parent
3 = son or daughter
4 = brother or sister
5 = other relative
6 = friend
7 = professional carer
8 = other (specify)
Clinician Use Only
Numeric scores assigned to each of the items:
1
2
3
4
5
Raw Item Score
Raw Domain Score
Average Domain Score
In the last 30 days, how much difficulty did your relative have in:
Understanding and communicating
D1.1
Concentrating on doing something for ten minutes?
None
Mild
Moderate
Severe
Extreme or
cannot do
2
7
____
30
1.17
____
5
D1.2
Remembering to do important things?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D1.3
Analyzing and finding solutions to problems in day-to-day life?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D1.4
Learning a new task, for example, learning how to get to a new place?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D1.5
Generally understanding what people say?
None
Mild
Moderate
Severe
Extreme or
cannot do
2
D1.6
Starting and maintaining a conversation?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
Getting around
D2.1
Standing for long periods, such as 30 minutes?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
0
____
25
0
____
5
D2.2
Standing up from sitting down?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D2.3
Moving around inside their home?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D2.4
Getting out of their home?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D2.5
Walking a long distance, such as a kilometer (or equivalent)?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
Self-care
D3.1
Washing his or her whole body?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
3
____
20
0.75
____
5
D3.2
Getting dressed?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D3.3
Eating?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D3.4
Staying by himself or herself for a few days?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
Because of their health condition, in the past 30 days, how much difficulty did your relative have in
Getting along with people
D4.1
Dealing with people he or she does not know?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
0
____
25
0
____
5
D4.2
Maintaining a friendship?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D4.3
Getting along with people who are close to him or her?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D4.4
Making new friends?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D4.5
Sexual activities?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
Life activities—Household
D5.1
Taking care of his or her household responsibilities?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
0
____
20
0
____
5
D5.2
Doing his or her most important household tasks well?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D5.3
Getting all the household work done that is needed?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D5.4
Getting the household work done as quickly as needed?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
Life activities—School/Work
If your relative works (paid, non-paid, self-employed) or goes to school, complete questions D5.5-D5.8, below. Otherwise, skip to D6.1.
In the past 30 days, how much difficulty did your relative have in:
D5.5
His or her day-to-day work/school?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
7
____
20
1.75
____
5
D5.6
Doing his or her most important work/school tasks well?
None
Mild
Moderate
Severe
Extreme or
cannot do
2
D5.7
Getting all of the work done that is needed?
None
Mild
Moderate
Severe
Extreme or
cannot do
0
D5.8
Getting all the work done as quickly as needed?
None
Mild
Moderate
Severe
Extreme or
cannot do
2
Participation in society
Participation in society in the past 30 days:
D6.1
How much of a problem did your relative have in joining in community activities (for example, festivities, religious, or other activities) in the same way as anyone else can?
None
Mild
Moderate
Severe
Extreme or
cannot do
4
24
____
40
3
____
5
D6.2
How much of a problem did your relative have because of barriers or hindrances around him or her?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
D6.3
How much of a problem did your relative have living with dignity because of the attitudes and actions of others?
None
Mild
Moderate
Severe
Extreme or
cannot do
2
D6.4
How much time did your relative spend on his or her health condition or its consequences?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
D6.5
How much has your relative been emotionally affected by his or her health condition?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
D6.6
How much has his or her health been a drain on his or her financial resources or the financial resources of other relatives?
None
Mild
Moderate
Severe
Extreme or
cannot do
4
D6.7
How much of a problem did you or the rest of his or her family have because of his or her health problems?
None
Mild
Moderate
Severe
Extreme or
cannot do
3
D6.8
How much of a problem did your relative have in doing things by himself or herself for relaxation or pleasure?
None
Mild
Moderate
Severe
Extreme or
cannot do
2
General Disability Score (Total):
41
___
180
1.14
____
5
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